Invisible Illness: Talking to Children

When illness strikes, children have questions. Financial compliance officer Jae Logan found this out the hard way when she suddenly fell ill with a rare, one-in-a-million disease and thought she was going to die.

“I had to think of a way to say goodbye to them without saying goodbye and traumatizing them,” she recalls. “So, I just pushed every single bit of mom advice that i could on them and just made them promise to love each other and always be kind.”

She had multiple blood clots in her lungs, liver dysfunction, pain, and no immediate diagnosis. After a night in the hospital, endless tests and talk of a liver transplant, the doctors finally figured out what was going on.

“They told us that I have Budd-Chiari Syndrome which is a rare liver disease. And in addition to that, I have three clotting factors. And then, on top of it, my liver, the the veins in and out of my liver, are occluded.”

Now, a decade later, the kids are older and Jae is mostly doing fine. But the experience of being honest with her children without freaking them out was a challenge that she and her husband met with success. And so came the inspiration for her book, Mommy Doesn’t Look Sick. Written in simple language with wonderful illustrations by Debra Bender, Jae’s parent-to-child message is clear.

“I care about you. You guys need to take care of each other. Here’s what you can do to help me. That type of thing is the message here.”

Mommy Doesn’t Look Sick offered Jae her first venture into self-publishing and all that entails. We talk about some of those nuts and bolts and the future of her brand Kids That Care Books in this episode of Type, Tune. Tint. Listen below:

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